Some of my favorite organizations and websites for finding food allergy information and community:
- FARE: Food Allergy Research and Education. Fantastic evidence-based tools, resources (including for the newly diagnosed), research and accurate information. FARE is a nonprofit whose mission is to advance a cure for food allergies and to provide education to keep people with food allergies safe and included. I especially love their new “Food Allergy Field Guide.”
- Kids With Food Allergies Foundation and Community (KFA). “KFA educates families and communities with practical food allergy management strategies to save lives and improve the quality of life for children and their families.” They have excellent free support forums, resources for parents of kids with food allergies (including a great starter guide to food allergies), a recipe database searchable by allergens, and regular interactive webinars from food allergy experts on everything from anaphylaxis to keeping your child safe at school. (I’m a monthly sustainer member myself).
- CoFAR (Consortium of Food Allergy Research): CoFAR’s focus is food allergy research, but they also have great PDF education materials on managing allergens in a wide variety of situations, on avoiding cross contact or cross-contamination and on avoiding specific allergens, even sesame.
- Allergic Living Magazine: Magazine for people living with food allergies, asthma, gluten-free diets and environmental allergies. The magazine is great but there are also plenty of free articles, resources, news and columns on the website.
- Asthma Allergies Children: A Parent’s Guide: Columns, news, research information and more for parents of children who have asthma, food and other allergies and eczema. Companion for the book of the same name.
- No Nuts Moms Support Group and Forum: A great private Facebook support group, and although many of the moms in the group are just managing nut or peanut allergies, there are many dealing with multiple allergies as well. Note that this is a very large and diverse group, and levels of knowledge about allergies, comfort levels about eating in restaurants , opinions on how strictly to avoid cross-contamination and what products are safe or unsafe vary widely.
- Sesame Allergy Information and Awareness support group: This Facebook group is much smaller than the no nuts group, and has a different vibe—all the members are dealing with sesame (a non-Top-8 allergy) but often also quite a long list of multiple allergens such as milk, eggs, nuts, peanuts, mustard and more. Members share emails and phone calls from companies about whether items contain or might be contaminated with sesame. LOVE this group so much.